About a quarter of US adults have nonalcoholic fatty liver disease (NAFLD) & ~20% of those patients likely have nonalcoholic steatohepatitis (NASH), which can lead to cirrhosis and liver failure.
It is estimated that a quarter of US adults have nonalcoholic fatty liver disease (NAFLD). Approximately 20% of those patients are projected to have nonalcoholic steatohepatitis (NASH), which can lead to cirrhosis, liver failure and hepatocellular carcinoma. Yet preliminary results from the PaTH Clinical Research Network indicate that NASH may be substantially under documented. This project will characterize patients with a confirmed diagnosis of NASH/NAFLD as well as individuals whose electronic health record data suggests that they may be living with advanced liver fibrosis without having a liver diagnosis to explain this finding.
Are you interested in working with a team of health researchers to consider what data related to NASH/NAFLD may mean for clinicians and patients? The research team is looking to identify a patient to contribute as an advisor to a dynamic team of researchers and clinicians from 10 health systems. This role would involve ~8 hours of time over 3-6 months in 2021. The partner will participate in discussions of research findings and implications for health decision making. Compensation will be provided.
Age 21 and older, living in Florida, Louisiana, Maryland, Michigan, Ohio, Pennsylvania, or Texas, with personal experience living with non-alcoholic steatohepatitis (NASH) or non-alcoholic fatty liver disease (NAFLD).
Funded: Pfizer
Want to ask a question or share an idea with this researcher? Go ahead and ask!
Your question may end up on this page! The researcher will review all questions and decide whether to post the answer publicly. Your question will not be attributed to you.
Do you or does someone you know have a story related to this study? Your story can help this researcher know what to study.
We'd love to hear it.
We're sorry. Team building for this study is now complete and it is no longer engaging additional people.
Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.
Copyright 2019 | PaTH Network
