I didn't feel like I had to drive the bus

September 20, 2019 | 22m 31s

In this story, a mother shares her experience with her daughter's Down Syndrome diagnosis and how her medical team has helped throughout the years.

Helped me learn (1)

Made me feel better (0)

Story Transcript

A transcript for this story does not exist. If you're a researcher who is transcribing this story for research purposes, please email the transcription to us.

STORYTELLER ATTRIBUTES

AGE:60 - 69

GENDER:Female

EDUCATION:More than a college degree

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):5xxxx

PERSPECTIVE:Caregiver

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Ear, Nose and Throat; Endocrine System; Eyes and Vision; Immune System; Lungs and Breathing; Mouth and Teeth; Mental Health

DISORDER OR CONDITION TYPE:Brain and Nerves; Genetics/Birth Defects; Infections, Injuries and Wounds; Obesity; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need

Share your health story

Share your own story to help others understand what it is like to live with health problems.

Learn more about sharing your story

Resources

Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.

Visit our Resources page