“...I literally had to beg, I had to get urgent referrals…”

August 31, 2022 | 26m 53s

This storyteller shares their experience navigating the health care research system, at the beginning of COVID-19, after being diagnosed with Sjogren's Syndrome; an autoimmune disorder.

Helped me learn (7)

Made me feel better (8)

Story Transcript

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STORYTELLER ATTRIBUTES

AGE:50 - 59

GENDER:Female

EDUCATION:College graduate

RACE/ETHNICITY:White

LOCATION (ZIP Code 1st digit):9xxxx

PERSPECTIVE:Patient

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Brain and Nerves; Digestive System; Ear, Nose and Throat; Endocrine System; Eyes and Vision; Immune System; Kidneys and Urinary System; Lungs and Breathing; Mouth and Teeth; Skin, Hair and Nails; Female Reproductive System; Male Reproductive System; Mental Health

DISORDER OR CONDITION TYPE:COVID-19; Brain and Nerves; Infections, Injuries and Wounds; Mental Health; Having multiple health conditions at the same time

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need

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