This storyteller shares being alongside their spouse through their Myotonic Dystrophy diagnostic journey and the frustration of working with health care workers with a chronic, debilitating condition.
A transcript for this story does not exist. If you're a researcher who is transcribing this story for research purposes, please email the transcription to us.
Share your own story to help others understand what it is like to live with health problems.
Wondering what it's like to be a patient partner in a clinical study? Here are some links to resources.
Copyright 2019 | PaTH Network