...when mistakes are made, it should be an opportunity to correct them...

August 18, 2021 | 37m 24s

A genetic disorder passed down through now three generations, leaves this storyteller sharing their experience with CADASIL and the challenges with getting answers when research has not reached far enough.

Story Transcript

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STORYTELLER ATTRIBUTES
50 - 59
Female
More than a college degree
White
1xxxx
Patient
STORY TYPE
Blood, Heart and Circulation; Brain and Nerves; Immune System; Kidneys and Urinary System
COVID-19; Brain and Nerves; Genetics/Birth Defects; Having multiple health conditions at the same time
Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Supporting family members who are sick; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need
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