I got to fight for other individuals who have this disorder

October 07, 2019 | 15m 00s

After being diagnosed with a rare blood disorder, his storyteller talks about her journey and the importance of self-advocacy

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STORYTELLER ATTRIBUTES

AGE:60 - 69

GENDER:Female

EDUCATION:College graduate

RACE/ETHNICITY:Black, African American, African, or Afro-Caribbean

LOCATION (ZIP Code 1st digit):9xxxx

PERSPECTIVE:Patient

STORY TYPE

BODY PART(S):Blood, Heart and Circulation; Bones, Joints and Muscles; Immune System; Kidneys and Urinary System; Lungs and Breathing

DISORDER OR CONDITION TYPE:Cancers

TOPIC:Experiencing symptoms; Finding out a diagnosis; Being treated; Getting tests or advice for how to be healthier; Communicating with doctors and nurses; Making decisions about the right health care or treatment for you; Describing how easy or hard it has been for you to get the health care you need; Getting health care that is right for your cultural or religious beliefs; Getting health care that is right for your sexual orientation; Getting health care that is right for your gender identity

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