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DATA USE AGREEMENT FOR PATH CDRN PATIENT STORIESIndividual Access – Listen Only
This Data Use Agreement (the "Agreement") is made as of the date of signature (the “Effective Date”) by and between the University of Pittsburgh – Of the Commonwealth System of Higher Education, a Pennsylvania nonprofit corporation located at Office of Research, 123 University Place, Lower Lobby, Pittsburgh, PA 15213 ("Provider"), and the undersigned ("Recipient").
WHEREAS, Provider has developed an archive of audiotaped and transcribed patient and caregiver delivered stories and related questionnaires concerning each participant’s personal experiences with health and health care (“Stories”); and
WHEREAS, the collection and archival of said stories and questionnaires was performed under Provider’s Institutional Review Board (“IRB”) review and approval, and each patient has consented to have their individual de-identified story and questionnaire data disseminated for research purposes; and
WHEREAS, Provider is willing to make certain of the story and questionnaire data available to Recipient for the purposes of informing the development of patient-centered research questions or otherwise planning patient-centered research ("Purpose"); and
WHEREAS, Provider agrees to make available the Data Set described below, provided that Recipient agrees to abide by the terms and conditions of this Agreement as well as applicable IRB requirements.
NOW, THEREFORE, in consideration of the covenants and promises hereinafter set forth and intending to be legally bound, Recipient hereto agrees as follows:
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